Additional Resources - General Support
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American Academy of Pediatrics
Provides informational services to parents including a resource guide, child care books, immunization information, and more. The Academy also provides the Medical Home Initiatives, a center for children with special needs. The center provides support to pediatricians, families, and other medical and non-medical providers who care for children with special needs in the changing health care environment.
American Association on Intellectual and Developmental Disabilities
AAIDD promotes progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities.
The Army Exceptional Family Member Program
To consider the special medical and/or educational needs of the soldier's family members during the assignment process. In addition, to assign the soldier where the facilities and required services are available but where the needs of the Army can be satisfied.
Online only resource directory for parents seeking pediatric dentistry in their local area. The site includes information as well as recreation and games for kids and community information. Covers all regions within the United States.
An article on HomeAdvisor that talks about creating backyard sanctuarys for your kids
A non-profit, community based health organization dedicated to increasing the independence of children and adults with disabilities or other special needs.
Exceptional Parent Magazine
Continuing 32 award-winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
Give Kids The World Village
Give Kids The World is a non-profit resort that creates magical memories for children with life-threatening illnesses and their families. Wish-granting organizations coordinate transportation to Orlando, while Give Kids The World provides accommodations at its whimsical resort, attractions tickets, and meals for a week-long fantasy vacation. Children ages 3-18, battling a life-threatening illness as deemed by a medical doctor are eligible, regardless of income. Families that visit Give Kids The World must be referred by a wish-granting organization or foundations.
Conditions: AIDS / HIV, ALS, Blood Disorders, Brain, Brittle Bone Disease, Cancer, Celiac Sprue, Cerebral Palsy, Cystic Fibrosis, Developmental Delays / Disabilities, Diabetes, Epilepsy, General, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Kidney, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Prader-Willi Syndrome, Sickle Cell, Spina Bifida, Spinal Cord Injuries
Guide Dog Foundation
The Guide Dog Foundation matches students and guide dogs together. Students come from all over the U.S. and the world to undergo a 25-day training program to learn skills and commands needed to foster a successful working team. Upon graduation, student and guide dog return home together. There is no cost to the student for the training or dog. Travel within the U.S., Canada and Mexico will be paid and there are no fees for room and board during training
HUGS (Help, Understanding & Group Support)
Provides support and family services to parents of children birth to 21 diagnosed with having a life threatening illness or considered to be medically fragile. Provides service to the whole family.
An online resource about inclusion. Together We're Better. All Means All. Inclusion Means WITH - Not Just IN.
Jonah & The Whale Foundation
Provides parents with Parent Binders and resource materials to encourage organization of medical and educational information and to further encourage better communication between all parties involved. The foundation also has a web library with books about many diseases and disabilities for parents to use or even purchase at low cost, a collection of durable medical equipment is also available for parents who have exhausted every avenue to obtain insurance coverage. Finally the foundation offers emotional support for the parents and siblings as well family networking for parents to meet others in similar circumstances.
Kids As Self Advocates
KASA is a national, grassroots project created by youth with disabilities for youth.
Locks of Love
A non-profit organization that provides custom, vacuum-cap hairpieces to financially disadvantaged children with long-term medical hair loss.
March of Dimes – National
Offers education, information and referral services to families with children of developmental disabilities. For questions about March for Babies, special events, or other local activities, please contact the local March of Dimes office nearest you
Conditions: Developmental Delays / Disabilities, Physical Disabilities
The MedicAlert Foundation is a leading healthcare informatics organization dedicated to providing services to our members that protect and save lives. MedicAlert provides comprehensive Kid Smart services that can safeguard and identify your child in an emergency. With a single phone call, emergency response personnel can access medical history and records, protecting your child against potentially adverse treatments or medication conflicts. When you complete the application, you must list all conditions, allergies and medicines even though they are not listed on the application. Cost is just $39.95 for first year enrollment, and $25 per year thereafter. Sponsored memberships are available for those who meet the requirements. E-mail: If you are a MedicAlert® Member please include your name & Membership Number.
The National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
Online Speech Pathology
OnlineSpeechPathologyPrograms.net was created to help prospective speech pathology students find the right program that fits their educational needs. It offers articles that cover career opportunities and answers to common questions students and professionals have about the diverse field of speech pathology.
Our mission at PayingForSeniorCare.com is to help the elderly and their family fully understand the cost of long term care and the programs that can provide financial support. We have an online database of tools, references, and articles that cover topics like available care options, and free resources that are available in your state.
Special Needs Information (Miscellaneous)
A robust site filled with information on special needs planning and the laws.
Tips For Travelers With Disabilities
A guide to airlines' disability travel accomodations written by Cheapflights Media.